You know that saying, ‘life is a roller coaster’? There’s no denying it’s true, but I’ve got to admit that nothing has caused it to feel more accurate than watching my baby son go through frequent medical ups and downs while I am powerless to stop it. Sure, life is never perfect, but compared to these last few months I feel like much of life has been more of a gradual trek up and down various hills and valleys rather than a white knuckle ride with danger around every corner. Those who have been tracking with my recent posts will have read about our family’s journey through my infant son’s initial diagnosis in the womb with a severe brain bleed and resulting hydrocephalus (extra fluid build up in the brain causing potentially dangerous pressure increases with many and varied possible outcomes, both short and long term) and our joyful relief tinged with some ongoing trepidation about the future when we were able to bring him home from the hospital, continuing to pray for healing as we sought to ‘ask boldly and surrender completely’. Now, two and a half months down the track, it’s time for an update.
1. How Quickly Things Can Change
On Thursday I sat in a small room in a large hospital… again… waiting to hear some good news from the doctors, waiting for some answers, waiting to find out what they can do to help (and when), waiting to see what God will do in this situation and how He will use it for our good and for his glory. Before I go any further forward, I suppose I should go back a couple of weeks… It’s Sunday night. This time the previous week I had been sitting down with my wife, preparing for work to get busy again after a short holiday break, and just generally enjoying the stage of life we’re in with an almost two year old filling our days with joy and another little one on the way.
On Tuesday, we were to attend our final ultrasound before the next baby is born. The scan was booked for 32 weeks for a fairly routine check-up. I was excited to see our little baby for the second time. After attending the first scan I had missed the second scan, so I was keen to see how it had grown. The scan was going fine, we thought, and then the sonographer said she needed to get some extra paperwork. At this point my wife and I didn’t think much of her exit from the room, and I even (perhaps naively) thought the 15-20 minute wait until she returned was nothing to worry about. You just kind of assume things will go alright, well, at least that’s what I assumed. When she returned though, my wife and I heard words you never want to hear as expectant parents during an ultrasound; “I’ve noticed some things that I think you need to speak to a doctor about.” I remember sitting there thinking: hang on, this pregnancy has been quite smooth, the baby has been healthy all the way along, what could possibly be wrong all of a sudden? When I tried to ask for specifics, I was told “I think you really need to speak to someone who is trained to talk to you about this.” So it began…