A year ago today I…
A year ago today I had just been through one of the most stressful experiences of my life.
A year ago today I was sitting in a hospital room with my wife, talking about our new baby boy and deciding on his name.
A year ago today I was leaving that same hospital room periodically to check on my brand new baby in the Special Care Baby Unit, hoping his oxygen levels would stabilise, and that the raft of negative outcomes and worst case scenarios we’d been asked to prepare for would not eventuate.
You know that saying, ‘life is a roller coaster’? There’s no denying it’s true, but I’ve got to admit that nothing has caused it to feel more accurate than watching my baby son go through frequent medical ups and downs while I am powerless to stop it. Sure, life is never perfect, but compared to these last few months I feel like much of life has been more of a gradual trek up and down various hills and valleys rather than a white knuckle ride with danger around every corner. Those who have been tracking with my recent posts will have read about our family’s journey through my infant son’s initial diagnosis in the womb with a severe brain bleed and resulting hydrocephalus (extra fluid build up in the brain causing potentially dangerous pressure increases with many and varied possible outcomes, both short and long term) and our joyful relief tinged with some ongoing trepidation about the future when we were able to bring him home from the hospital, continuing to pray for healing as we sought to ‘ask boldly and surrender completely’. Now, two and a half months down the track, it’s time for an update.