Today is my youngest son Josiah’s third birthday. Recently, my older son, Asher, turned five. For me at 35, my birthday is not super significant. It’s a good milestone each year, and a chance to celebrate with those I love, but it doesn’t hit for me the same way as my kids’ birthdays. I imagine there’s a certain amount of reflection that is unavoidable as a parent celebrating your child’s birthday, and when your child’s health journey is, shall we say, less than straightforward, it feels like this is amplified even further. Just last week we had one of those moments where everything sort of pauses or slows down temporarily due to a health scare, as we wait to find out what is wrong below the surface, what can be done, how quickly and what the outcome will be. Thankfully, this time was a minor one, but more on that later.

This reflection is healthy, I think, and worthwhile, but has its challenges too – but first, an update…